Help! My Vitiligo Is Growing! [5 Tips]

Hey everyone,

If you’re subscribed to me on YouTube, are friends with me on Facebook, or follow me on Twitter or Instagram, you already know that I recently published this video on what to do when your vitiligo is GROWING and you are freaking the frick out.

The video explains it all really. But I do want to say that it has taken me a long time to develop my attitude towards vitiligo, so if you do decide to try my tips out, be patient! It takes time for the “tough psychological” stuff to really sink in and work. And you have to work at it to make it work. Work work work. Haha, it can feel tiresome at times, but trust me it is WORTH it. Standing where I am, and looking back on how I used to feel, I am so grateful to be here.

If you would like to chat with me about your growing vitiligo, check me out on social media:

Or email me at aruna (at) arunagee (dot) com. I will do my best to respond as fast as I can.

Warmly,

Aruna

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6 Ways to Live & Love (With Vitiligo)

Several months ago, a young man emailed me completely flustered. He was in love. But Nana, his girlfriend, was pushing him away because she had Vitiligo. And it was killing him to be shut out. In fact, she thought she was doing him a favor. She did not want to relegate him a life of shame, living with someone whom all of society would shun. She loved him back, but she wanted to protect him.

As I read his email, I realized that he did not care whether or not Nana had Vitiligo. He didn’t care about society or what anyone would say about her. He just wanted to be with her.

He asked that I make a video filled with helpful advice, made just for her. So that she would not lock herself in her house all day. So that maybe someday she could hope for a happy life again.

How could I say no to that?

This is the video I made for Nana.

Here’s a friendly reminder to jump for joy EVERY day! Your skin, your physical appearance, does not define who you are, what you’re capable of, and frankly – how freaking amazing you are. Radiate positivity, and everyone around you will barely even notice the things you used to tell yourself were “imperfections”.

All my love,

Aruna

4 Ways to Detect “Vitiligo Treatment” Scams

Nothing gets under my skin like people taking advantage of others. Unfortunately there are many fake vitiligo cures out there that, over time, have caught my eye. At first I’m always intrigued, but after doing some research it looks like there’s almost always something off about those “cures.” Even websites that claim to sell a natural treatment for vitiligo are often preying on the vulnerability of those who are eager to get rid of their white spots. Many natural remedies included in those systems are available for better prices elsewhere on the internet. So I decided to make a video giving 4 tips to help you figure out whether the vitiligo treatment you’re looking into is just a hoax:

Recap:

1. Does the vitiligo treatment sound too good to be true? It probably is. Keep in mind that this is one red flag of many, so if there are other red flags in addition to this one, you’ll want to steer clear!

2. Are the glowing testimonials about that treatment fake? It may not be immediately obvious, but if you review testimonials more than once you’ll start to see inconsistencies, or a lack of genuine tone, or something that just seems off. Testimonials can come in the form of comments, videos, blog posts, or even what seem to be reputable websites.

3. Does the vitiligo treatment cost an arm and a leg? More than $50? If you’re not speaking with a trusted source, like a doctor, in person – it’s a scam. I say that with 99.9% confidence. Of the things I’ve read and experienced, there is no one “cure” out there that is 100% guaranteed to cure ANY vitiligo on any person’s body. There are so many different types of vitiligo and everyone has different body chemistry. So it’s a guessing game. If you’re searching for the right treatment for you, expect to explore more than one option. This means, unless you have the resources, you probably don’t want to spend $500 per treatment. At least, I know I don’t!

4. Does the treatment or system consist only of herbal supplements? There has been a recent surge of websites that promote herbal systems to treat vitiligo. I’d be cautious about these. Do your research and see if you can get a higher quality herb elsewhere. Or perhaps they are charging you exorbitant amounts of money for an enticing vitiligo system that would cost much less if purchased elsewhere, sans the label slapped on.

The eBook I mentioned in the video is not a “cure” … just like my “vitiligo cure” video wasn’t a cure. But it definitely reveals interesting information about vitiligo, great healthy eating tips, and methods and resources for de-stressing.

As always, please don’t hesitate to be in touch! You can comment here, or tweet me @arunagee 🙂

Yours,

Aruna

Stress Reducing Heating Pad, and Paring Down Posting Frequency

Well, it’s Friday! And I didn’t plan a post for today, mostly due to time constraint. So, today’s post gives me the perfect opportunity to announce my less frequent blog posting plans. Even after factoring in the time saving pre-scheduled posts I mentioned earlier this week, I still need to make more time for me (and my boyfriend and little doggies) during the week.

Going forward I plan to post a minimum of 3 times a week.

I have to admit that for some odd reason I am scared of posting less frequently. If it’s at all possible, I’ve become attached to my blogging schedule, the comfort of daily accomplishment, and the joy of exploration. I’m not sure what exactly I’m scared of, and I’m not sure what I’ll lose or miss. But I do know what I’ll gain, and what I could plan to do with some of that extra time (like make more videos, or go on more adventures).

And since my 3-times-a-week posting plan does not start until Monday, I decided to include an easy stress reducing tip. Stress is linked with vitiligo, which means minimizing stress is not just generally healthy : )

To reduce stress, I use a microwave heat pad for my body’s most stressed and sore spots! Here are some examples. There are hundreds, they are widely available, and they are relatively inexpensive. I use mine for my neck and shoulder muscles 3 times a day: every morning, when I get home from work, and before bed. Your most vulnerable spots may be completely different than mine, but heat therapy is sure to feel great and help easy any pain or tension. If you have tension like me, I hope this helps!

Yours,

Aruna

Dermablend Profesional’s Camo Confessions Campaign

Hey guys! Today I’m excited to do my viti-Friday post on a video I made for Dermablend Professional’s Camo Confessions Campaign. The campaign went live this Monday, March 10th and my humble video (with poor lighting and zoomed in way too close to my face) appears on the second page of their “Get Involved” tab on the Camo Confessions YouTube page.

A few months ago, two lovely Dermablend reps contacted me asking me to create a short video that followed these guidelines:

  • talk about my skin story (vitiligo, etc.)
  • have a “reveal moment”
  • film where and how I usually do (yup – bad lighting and awkward space to boot!)
  • be myself!

I was thrilled to oblige, especially since they’re donating $1 to the Look Good Feel Better Foundation for every video that’s submitted. If you have a chance, I would be forever grateful if you watched it, liked it via YouTube, and left a comment telling me what you think. I plan to post a “bear makeup tutorial” video sometime soon 😛

Submit your own video!

  • Go to the campaign’s YouTube page. (You’ll only be able to see the page on a computer or laptop.)
  • Click on the “get involved” tab and click “submit your confession now.”
  • It’ll take you to facebook, where you can upload your video!
  • You can add your video to your YouTube channel too, but by posting it to the Camo Confessions page, it’ll give them a chance to donate the $ mentioned in the campaign and to post it on their “get involved” tab!

Let me know if you upload a video!! I would love to watch it 🙂

Here’s some other useful info if you plan to make a contribution to the campaign …

Brand: Dermablend® Professional
Campaign name: Camo Confessions
Campaign URL: http://www.youtube.com/user/dermablendpro/camoconfessions
Campaign Hashtags: #CamoConfessions #MyCamo #DermablendPro #BlendInToStandOut
Campaign Purpose: Reveal how you “Blend in to stand out” to inspire others and to help woman battling appearance related side effects from Cancer treatments. Each confession submitted, Dermablend will donate $1 to the Look Good Feel Better Foundation® http://lookgoodfeelbetter.org/

The brands handles for tagging purposes:
·         Instagram: @Dermablendpro
·         Twitter: @Dermablendpro
·         Facebook: Dermablend professional
·         Youtube: Dermanlendpro

Yours post-confession,

Aruna

Massage Goodness on Vitiligo Friday

This week has been tough. Sleep-wise. Luckily I scheduled a massage for today at Pyara Spa and Salon in Harvard Square.  I look forward to my massages with an amazing lady name Randy Sue all month. I have a membership with them for 30 minute elements massages once or twice a month, and I receive a discount. (Who doesn’t love discounts?)

Massages help me sleep better (time permitting – sigh!) and good sleep helps to keep my vitiligo from spreading. My body is frustratingly sensitive and over the course of even one week knots start to form in my back and neck area. By the time I make it to my appointment with Randy Sue, some of the knots grow to a substantial size. It’s a bit scary really.

Randy Sue and I asked someone to snap a photo of us. I have to apologize for the horrible image quality though. The lighting was unforgiving, and my iPhone does not take the best photos (as I learned at the Boston Wine Expo the weekend before last).

Randy Sue and Me
Me and Randy Sue

I have been going to Randy Sue for over 8 months. She has an intuitive technique. Her massages adapt to my needs, which can change from massage to massage.

Here’s her bio:

Education

Polarity Realization Institute in Ipswich, MA and have been practicing since 1999

Inspiration

Polarity is a hands on approach to the body’s energetic anatomy and seeks to bridge body, mind, and spirit. Polarity supports strong connections to my other healing and holistic health systems, making a great fit with Aveda. I work intuitively and with great respect towards the human body, creating a safe and healing space for each of my guests that I have the honor of working with.

If you’re ever in the Cambridge area and are wondering where to get a massage, I highly recommend Randy Sue! If you have vitiligo, or a sensitive body, get massages!!! Do it!

That’s all for today… *phew* Weekend! Weee!

Yours,

Aruna

Vitiligo Friday: Q & A

Hey there! If you’ve been reading my blog regularly, you’ll know that I recently started a full time job. By recently, I mean this week. Needless to say, I’ve definitely been short on time. With the added responsibilities of dogs that are old and need lots of love and care, and other home tasks, I haven’t been able to film the video exposing a vitiligo scam, which I mentioned in last week’s Valentine’s post.

However, this week I will post a Q & A about vitliigo, for anyone who wants a quick run-down of the viti-basics.

Q: What is it?
A: Vitiligo is a mysterious loss of pigmentation in the skin. It is thought to be an autoimmune disorder, which means that the body attacks the skin cells that produce skin color, called melanocytes. Melanocytes produce melanin, the brown pigment in skin.

Q: Is it contagious?
A: No. Vitiligo is absolutely not contagious, but if someone with self diagnosed vitiligo actually had a skin fungal infection, that’s another story. That is why it is very important to go to a dermatologist as soon as possible for diagnosis. As far as I know skin fungus is curable; many believe vitiligo is not …

Q: Is vitiligo curable?
A: While there is no well known cure for vitiligo, there are many treatments – some better than others. Allopathic (western medicine) treatments include phototherapy, topical steroids in cream form, oral medication, skins grafts (ouch), melanocyte transplantation (different than skin grafting), and skin bleaching. However, any good doctor will admit that success rate for repigmentation is guess-work even in best case scenarios. A substantial number of people have turned to natural remedies, and they swear by certain healthy foods (green smoothies, spinach, vegetarian diet, less or no alcohol, less or no sugar, etc.), good sleep (which works for me – odd I know), herbal supplements (like ginkgo biloba), and stress reduction (yoga, meditation, massages, tea, breathing well, staying positive). I plan to do more research on this topic and will be posting about it soon. (Note: DO NOT BE SCAMMED BY “VILITIGO TREATMENT SYSTEMS!” Do thorough research. Hell, email me and we’ll look it up together. But be AWARE that there are many scams out there.)

Q: What causes vitiligo?
A: The cause is unknown, though at least the onset of vitiligo is believed to be specifically stress-linked. (In my case, it certainly was.) Some also believe that vitiligo is hereditary. If you have been diagnosed with vitiligo, do not let anyone tell you that you have not bathed properly or eaten well. Those potential causes have already been ruled out. As aforementioned, healthy eating, sleeping, and lifestyle choices could help in the process of repigmentation, but those factors do not necessarily cause the skin condition.

Q: What do I do if I think I have vitiligo?
A: Here is a video detailing what you should do if you think you have vitiligo:

Q: My friend or family member has vitiligo. How can I help?
A: Be understanding. Many people with vitiligo, especially in visible places, struggle with body image issues and social anxiety. People stare. Believe your friend when (s)he tells you this! Make sure you’re available to listen closely. Blowing off steam is the best way to healthily deal with the emotional pressure of judging eyes. Reassure your loved friend or family member that they are as wonderful as ever. A difference in skin hasn’t changed who they are, and they deserve to be happy. Connect them with resources! There are online forums where others with vitiligo can connect and talk about similar experiences. (see below)

Q: I have vitiligo. Please help!
A: Talk with friends and family, a lot. Fingers crossed they have friendly ears.If they don’t, find friends online through trusted sites. (But don’t give too much personal information!) Blow off steam, don’t keep it in! Vent away!! But also remember that the goal is not to run yourself into the ground with negative thoughts or to beat yourself up for something you didn’t choose to have. Make it your goal to be comfortable in public in your own skin, regardless of what others ask or do. You’ll find that your happy eyes and smiling face will pull positive people into your life.

Here is a short list of some online resources I have found:

http://www.vitiligofriends.org/
Connect with your fellow vitiligo friends on this site. Share your story. Talk with others. See and share photos.
http://www.uniquelybeautiful.net/
Scroll through this simple grid of photos of many people with vitiligo. You are not alone.
My YouTube channel
If you want to 🙂 I have several vitiligo videos and more to come.
www.YouTube.com
Seriously. Search “vitiligo story” or “my vitiligo.”
Remember, to take tips from people who look glowing and positive in their videos!
Learn more about vitiligo on Web MD
What are the risks (few), what is the latest medical knowledge, how many people have it, etc.?

If you struggle with people staring, watch this video:

If you are interested in having any kind of treatment, it’s good to research things like what type of vitiligo you have, and the kind of treatments that may be most effective for that type.

As always, feel free to contact me @arunagee on twitter, in a comment below, or by email at aruna (at) arunagee (dot) com.

Yours,

Aruna